This questionnaire is asking information about fatigue and exercise intolerance in patients with juvenile dermatomyositis and their unaffected siblings.  To participate, we are requesting that a same gender sibling closest in age who does not have JDM also enroll in the study, but this is not a requirement- if you have an opposite gender sibling or do not have a sibling, you can still participate.  We request only 1 sibling per family participate, with a preference for same gender sibling if available and also the one closest in age if more than 1 same gender sibling exists. We are also collecting information about family background, as part of the research.

 

If you are the Sibling of an Adult patient with JDM, these questions are about you.

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